Friday, September 21, 2007

The Yeast Monster

Dinner party at home.

FIRST dinner party in our new home.

10 adults 4 kids (mine, a 1 year old girl and 3 year old twin boys)

Worked really hard all day getting ready.

Dinner party a success except maybe:

Our son spending more than 1 minute total (n the 3 hours everyone was here) with anyone or mingling with the other kids.

Lots of stimming in the way of ear covering, closing/flickering eyes, a lovely noise of a hackling throat like he is going to spit but doesn't and inhaling so hard we think he will really hurt himself because it's so harsh. It's the new dose of stimming of the month I guess. There are some odd ones I don't know how to even put in writing!


The night was capped off by one of those memorable autism moments. I stupidly decided that since the Omnicef dose was so small, I would attempt a spoon instead of hiding it in his food. Bad idea. It was a bad idea the first time when he spit it out and then sprayed it all over himsefl, myself and anything directly in front of him as well as the 2nd time when I so stubbornly attempted again. I had to literally pin him down, give it to him and he spit it right out. I was so angry at myself and at the situation. Not at him. I know this is not him, it's the autism acting and it pisses me off. He knew mommy was mad but couldn't say anything. Amazing how he was fighting me one second and the minute I stop, he went right back to what he was doing like nothing ever happened.


In fact, I am having one of those weeks where I am just down right fed up. Is it going to change anything? no, but I am human and cannot help how I feel.




The last 2 weeks it seems we have been hit with a dose of strep, not in the throat but a yeast infection in his little tush. Nice huh? just the added fun we wanted. In turn, the stimming has been out of control and it could explain the bizarre behavior from the other day while getting a haircut. Insert deep breath here. It finally got so red we asked our DAN! doc where to go. He actually sent us to the pediatrician for a strep culture. All the waiting in the peds office was fun as it always is and all to get what we already confirmed, strep.


We also got the dreaded antibiotic prescription. The last time he got antibiotics was in 2004! Called the DAN! doc to run it by him first for approval. Instead of the Amoxycillin beast he wanted him on Omnicef and then we also got a gem called Bactroban for the affected area. Oh happy day! He thought that since he never takes antibiotics this should help right away. It's been 3 days and it's the same and the behavior as well.


Our kids are usually plagued by some form of yeast. The odd thing to me is that nothing in his diet has changed. It has been exactly the same. I already told them in school a thousand times to please watch him in case he is sneaking in someone else's food but I can't be sure since I am not there all the time. He takes probiotics and is on a GFCF diet. This makes me crazy. The hyper and extra stimmy behavior out of the blue, all of a sudden.


I mentioned to the DAN! doc if it could be P.A.N.D.A.S which I read about, he said we would be watching for it. Then he proceeded to lecture me on not making the next appt. with him on time because now it would be months before I got in. Are you really lecturing me? an adult? with all the shit I have going on? Seriously! I like this guy and all but maybe I am ready to part ways and meet someone else.


Anyway, back to yeast. Why now? What triggered it?It is very odd that he is not regressing in other areas, just in the hyperactivity and stimming behavior.


Just today the teacher reported an improvement in his handwriting skills. Nothing to brag about just yet except an improvement in his tracing skills. Sad when something so exciting for us seems overshadowed by hackling, eye flickering and ear covering.


It seems to me that it is just harder to rebound from frustrations than ever. With all that we are doing for intervention , he should be way more advanced than he is. Yet he is not. What is a person to do? What is the missing link? What are we missing?


I cried myself to sleep. Uncontrolable , quiet crying. We co-sleep so it was hard attempting to have a private moment of desperation and wanting to cry out yet having to be so quiet about it. I must have fallen asleep at some point.

2 comments:

GFCF Mommy said...

I am so sorry, sounds like a crummy week for you all. You are right to stay on top of the strep and watch for PANDAS. Eric had that and it is what had caused all that OCD'ish stuff. None of us like the antibiotics, but you have to do it to kick the strep.

As for the yeasties and constipation, BTDT too. I totally sympathize with you. I am glad the supps worked. I know you will stay on top of that too. With constipation and yeast it can kind of turn into a vicious cycle.

Hang in there. We do need to do coffee! I have been thinking about you even though I've been a bit too involved in work lately.

Hugs,

Love,
Katherine

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