My son has autism
Kids with autism do random things
It is what it is
I am at my son's speech therapy center which is for kids with autism and they treat all sorts of disorders there. It is not Chuckie Cheese or Gymboree. It is what it is.
My son happens to be in a very good mood today. This means very hyper and friendly. This also means going up to strangers and giving them hugs and getting really up close in their face to look at them. It's called, stimming.
While waiting he is all over the place, climbing on chairs, going up to people, smiling, having a good ole time. He sees a woman with a stroller as she is attempting to exit the room. He jets over there ,before I can even jet out of my chair, and jams himself in between the door and the stroller.
Clearly he wanted to purposely annoy this woman right? He purposely wanted to be a pain. Not the case but you would have thunk it by the way this mom reacted. She started screaming. Screaming! like my son had hurt her daughter! all the while he is smiling and trying to get a good look at the cute little girl in the stroller who is saying "hiiiiiiiii". She screams "ExCUUUUSe me, ExCUUUUSe me" several times. This was all a matter of seconds but I made it as she was pushing her stroller out the door at any cost and all I could manage was a trailing " He DOESNT understand" as she fumed off rolling her eyes.
Oh, I'm sorry. Yes, my son innocently wanted to take a look at your little girl. Sorry he did such a horrible thing. Saying "excuse me" to a boy with autism is going to make him say "oh shoot, yes, of course, what was I thinking running into you" . Really. Yeah, that works.
A half hour goes by and my son happily comes out of speech. As I finish getting the details of his session from his teacher he runs to another little girl. This one a little older than him. She has some sort of disorder and looks paralyzed somewhat into her wheelchair. I jet behind him but he is just so much faster than I. He tries to touch her eyes and succeeds. He was not hurting her, just touching her eyes. Is it the right thing to do? no. Is it a pleasant thing to feel someone do to you? not really. Is it a devilish thing to do? I don't think so. Not if the "attacker" weighs no more than 40 pounds and has the biggest smile on his face as he says "baby" which is what he calls all little kids. I sternly call out to him not to touch but wait, the girls' father gives him round 2 of "Excuse me! Excuse me!" After I take my son's hands away, apologize to the man and tell my son "Do not touch" I turn around to the father and manage to say " He does not know not to touch. He does not understand it". He also rolled his eyes and continued talking to the woman next to him as I walked away.
Once in the car I fumed at both of these incidents. I understand this man was upset at the world. I have been there. I have plenty of bad days but screaming at a little boy at a center where it is obvious every single child has some kind of issue is just ridiculous to me. I would never do such a thing. In this center, out of all places, I am thee most accepting, embracing and understanding person to all the kids I encounter. My heart always breaks when I see them walk through those doors. Why? because like I said, it's not Gymboree or Chuckie Cheese. They are not there for fun. They are there because of a problem (s).
I cannot tell you how many times kids have come up to my son to take away his toy or to do something similar. It is what it is, it is what some do. I have never screamed at them. In fact, before I even direct any words to the other kids I look for the parent who I am sure is running huffing and puffing behind them. When that's not the case then with a smile and in a non accusing way, I reposition my son or retrieve the toy and say something like " no no" or "you want to play?" If a parent apologizes I simply say "don't worry about it". That's it. No drama, no screaming, no nastyness. Is that so hard?
In hindsight, I wish I could have said to both "No, exCUUUUSE You! Excuse you for not understanding that he did not mean to overstep his boundaries, that if he is doing such an odd thing and is at a center that is mainly for autism then it must be because he has autism or something wrong with him. Excuse you for not seeing that I was right behind him and not hiding behind a magazine ignoring his behavior. Instead I was rushing behind him to make sure everything would be ok. "
Come on now.




8 comments:
what a great post! I am with you 100% on this one and although my DS is just starting to do things like that, I wonder what kind of ugly things people will say when he doesn't know what he is doing.
Thanks J!
Good to know I am not completely insane. Sometimes our perspective gets a little askewed so it's good to know you get it! lol
Queenie, you are NOT insane. Every one of us with an ASD child goes through this. Mine was with a parent who cussed me out because I was trying to help Helena play on a YMCA soccer team. The thought that went through my head at the time was that his ingorance was only matched by his stupidity.
We are all with you on this.
I hope you and your family have a great holiday.
Thomas
Thanks Thomas!
How mean for someone to want a little girl to be left out of a team? speechless....
Happy Holidays to you all as well!
Hi, this is my first time visitng your blog and I really like it! Sorry to hear about your m/c...sigh. Sounds like you are doing well otherwise. Great job on the potty training! Matthew will be 3 in March and I'm trying to figure out if we should start now or wait until he is more verbal. Any advice? Cyndi
http://matthewsautismjourney.blogspot.com/
I am so sorry this happened to you. I agree, of all the places in the world, you would think a therapy center would be a safe zone with parents who understand.
Don't feel bad. The Prince, attracted to spinning wheels, has had a few encounters with people in wheelchairs or strollers
too.
Like Thomas said, just tell yourself these people are clueless, or think of witty comeback lines (whether you say them or not, it'll make you feel better! Such, as "my son has autism, what's your excuse!")
Try to forget about it and enjoy the holidays. Actually, those people should be flattered that a child with such a sweet spirit as your son would want to be near them. If they only knew what we know.
Hugs,
Katherine
I am so with you.
Hi, my name is Chrisd and I'm cruising through Autism Bloggers.
Hope you have a wonderful Christmas!
Thanks to everyone for their comments! they mean a lot!!!
Cyndi: go with your instinct. It depends on how much he understands. That was the hardest with Dylan because it's hard to get him to graps some concepts. Once he does, they stick.
You can start with some books and videos for him to get it. With Dylan we repeated for the longest time "pee pee in the potty" over and over. Then we had him in underwear and if he peed on it we would take it to the toilet and say "pee pee in the potty , not here".
The last step was giving him water and sitting him in the toilet in front of a portable dvd player he could only watch while sitting in the potty. That seemed to finally do the trick! he was too excited to get up and run away. It took forever though!
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