Thursday, April 24, 2008
Update on us
Grunts? I will take them.
It seems my little monkey is truly trying to communicate with us more than ever before. When disciplining him it goes something like this:
Me: Don't touch
Him: (Insert grunt here)
Me: I said don't touch the _________
Him: (Insert more grunts here)
and so on.
It's annoying but very cute that he is trying to "answer". He just can't find the words.
We have recently given him "I am sorry" and "ok mommy" to work with. He already picked up "I am sorry" or like he says "A- sorr"
There is continued progress just in slooooooooooooooooooooow teeney steps.
He has also been saying "are you ok?" instead of "I am not ok" it's his FIRST ever attempt to tell us something is wrong". Therefore he says "are you ok?" and we reply " are YOU ok?" and then there is silence but at least we now know when something hurts or is wrong.
He actually had a fever on Tuesday a.m. he told us in the middle of the night with his "are you ok" phrase. He stayed home from school today and he was doing his "nose" stimming which is this grotesque nose snort he does and then he said "are you ok? ears!" so that's some progress right? In the past he has complained about his ears but each time we take him there is no ear infection somot sure what is going on there. hmmmm
In another improvement as of late, he is now drinking completely from cups without any prompting! Such a simple thing that took so long to master.
We also just did a DMPS chelation challenge for which we are awaiting results and will be doing a double DMSA challenge next week.
I am anxiously awaiting for summer to begin to start his 20hr ABA weeks. I have high expectations from this being that 10K will be going out the window. :( It is the most expensive therapy yet even more than doing biomedical!
We took away all soy! the only thing remaining now is soy lecithin. That's it! Soon we will find a nice recipe for air because there is not much more left!
Oh and this is the best one! He can now draw a happy face! yup! he says:
"circle, 2 eyes, nose and a happy face (smile), ears and hair!"
They have been teaching him at school. I asked him to draw a circle and he drew the happy face and I could not believe it!
So, all in all, it's been going good. Still very slow and have not found our miracle but I will take anything that comes our way!