and it has certainly been interesting.
I will start with the bigger news. We are officially cheating on our DAN with another DAN...GASP! yup! well, I have needs you know? ha ha ha ha but seriously. I have not completely left our Dan # 1 but wanted to see what else is out there and get other opinions.
We had noticed that he was just acting out like he does when he has a yeast flareup. A lot of stimming and new things that have been driving us insane. The good thing on all of this is that he does continue to show signs of improvement so all the bad we complain about is the stimming really.
The new/returning stims: well there is some random hand flicking when excited which he has never had before, ear covering, heavy scripting, lots of crashing into things and my least favorite and perhaps TMI is the dry humping..OMG that does ever drive me up the wall. What the heck? he is 6? I specifically told my husband that was not my department but to deal with it at 6? URGH!
So we took him to see the new doc. The doc reorganized our current supplements. Took away 4 of the 18 but left the rest and replaced some (like his probiotics). She also upped his B12 dosage. I never even thought about that! of course that needed to be done. It has been 3 years! you would think that Dan # 1 would have done that!He had to do the dreaded blood, stool and urine tests. We have not gone in for the results. We go in next Monday so we will see what she says but this is too much.
He had been off the probiotics for 3 days to take the stool test and that just sent him off the wall. That's when it got worse. He got better once he got back on the probiotics but to see him flip out was not fun.
He is probably going to go on anti fungals and honestly I CANNOT WAIT!
In other good news, my little monkey has started 1st grade. The poor thing is in school until 1:45pm at which point I drive him to ABA therapy until 4:15. By the time we get home he has about 4 hours to bathe, have dinner and play. He has been exhausted poor thing. But, he is learning a lot. He knows my name, daddy's name, his school, city, state, grade. He is beginning to answer questions too. All of that is helping a lot in his daily verbal skills.
He is appropriately saying "i'm sorry" which is the cutest thing ever except he goes right back to doing what he was sorry for.....lol he'll get it eventually no?
Let's see what else, took him to see Disney on Ice last week and he really enjoyed the part with Ariel because of all of the ocean reference. Behaved pretty well.
Lastly, so excited about Jenny's new book! I bought it yesterday. Perfect timing too. Anything to diffuse closed minded Offit's book which is also out now. Gee , I wonder where my son would be had I never intervened to remove metals! idiot...but I digress....Go Jenny! woohoo!!! A million thanks!
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3 comments:
I LOVE J.M. too!
So what 4 supps did you remove? Did you have to wait long to see the other DAN. So are you going to use both now?
How did you remove heavy metals? We just started TD DMSA and I'm always looking for ideas/other experinces (on everyhting autism realted!)
IF you have some time, please come check out my blog and give me some advice. Thanks! :)
Hi!
I removed Lipoic Acid, Minerall, Sphingolin and Riboflavin.
I did not have to wait long at all to see the new DAN at all.
I think I will stick with the new one for now and see how it goes.
We just went today. I have to write about it but because of the amount of yeast that came back on the tests NO WAY can we keep chelating. The plan of action is kill the yeast and then get back to the metal issues.
In the past when we did, we used suppositories which is supposed to be the next best thing to an iv as per my DAN # 1.We tried DMPS and then DMSA.
I am hopeful that having yeast, although bad, is at least something to target and "fix".
Fingers crossed. Will go check out your blog now.
Thanks for stopping by!
I just read your blog for the 1st time and it's like listening to myself!! I just started blogging about my experiences trying to recover my son...keep us informed about the stem cell therapy! I am very curous about it!!
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