and it has certainly been interesting.
I will start with the bigger news. We are officially cheating on our doctor with another doctor. GASP! Yup! Well, I have needs you know? But seriously, I have not completely left our original doctor. I just want to see what else is out there and get other opinions.
We noticed that he was just acting out like he does when he has a yeast flare-up. A lot of stimming and new things that have been driving us insane. The good thing about all of this is that he does continue to show signs of improvement. All the bad we complain about is the stimming.
The new/returning stims: well there is some random hand flicking when excited which he has never had before, ear covering, heavy scripting, and lots of crashing into things.
So we took him to see the new doc. He reorganized our current supplements. Took away four, but left the rest and replaced some (like his probiotics). She also upped his B12 dosage. I never even thought about that! Of course, that needed to be done. It has been three years! You would think doctor # 1 would have done that! He had to do the dreaded blood, stool and urine tests. We have not gone in for the results. We go in next Monday, so we will see what she says, but this is too much.
He had been off the probiotics for three days to take the stool test, and that just sent him off the wall. That's when it got worse. He got better once he got back on the probiotics, but to see him flip out was not fun.
In other news, my little monkey has started 1st grade. The poor thing is in school until 1:45pm at which point I drive him to ABA therapy until 4:15. By the time we get home, he has about four hours to bathe, have dinner and play. He has been exhausted. But, he is learning a lot. He knows my name, daddy's name, his school, city, state, grade. He is beginning to answer questions too. All of that is helping a lot with his daily verbal skills.
He is appropriately saying "I'm sorry" which is the cutest thing ever except he goes right back to doing what he was "sorry" for.....lol he'll get it eventually, no?
Took him to see Disney on Ice last week, and he enjoyed the part with Ariel because of all of the ocean reference. Behaved pretty well.
That's it for now...more to come.
3 comments:
I LOVE J.M. too!
So what 4 supps did you remove? Did you have to wait long to see the other DAN. So are you going to use both now?
How did you remove heavy metals? We just started TD DMSA and I'm always looking for ideas/other experinces (on everyhting autism realted!)
IF you have some time, please come check out my blog and give me some advice. Thanks! :)
Hi!
I removed Lipoic Acid, Minerall, Sphingolin and Riboflavin.
I did not have to wait long at all to see the new DAN at all.
I think I will stick with the new one for now and see how it goes.
We just went today. I have to write about it but because of the amount of yeast that came back on the tests NO WAY can we keep chelating. The plan of action is kill the yeast and then get back to the metal issues.
In the past when we did, we used suppositories which is supposed to be the next best thing to an iv as per my DAN # 1.We tried DMPS and then DMSA.
I am hopeful that having yeast, although bad, is at least something to target and "fix".
Fingers crossed. Will go check out your blog now.
Thanks for stopping by!
I just read your blog for the 1st time and it's like listening to myself!! I just started blogging about my experiences trying to recover my son...keep us informed about the stem cell therapy! I am very curous about it!!
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